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Grant support

The study is supported by the Alcorcon Foundation University Hospital (Hospital Universitario Fundacion Alcorcon) through a public grant from the Fondo de Investigaciones Sanitarias (Instituto de Salud Carlos III; Ministry of Science, Innovation and Universities). FIS Grant Number: PI19/01647. Authors declare that Fondo de Investigaciones Sanitarias (Instituto de Salud Carlos III) carried out independent review during the funding process.

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Guijarro, CarlosAuthorVelasco, MariaAuthor

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October 18, 2022
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Article

Evaluating the efficacy of an Advanced Care Planning Program for Health Decisions in patients with advanced heart failure: protocol for a Randomized Clinical Trial

Publicated to:Bmc Cardiovascular Disorders. 20 (1): 456- - 2020-10-21 20(1), DOI: 10.1186/s12872-020-01738-0

Authors: Sanchez, Beatriz; Guijarro, Carlos; Velasco, Maria; Vicente, Maria Jesus; Galan, Miguel; Herreros, Benjamin

Affiliations

Hosp Univ Fdn Alcorcon, Unidad Med Interna, Calle Budapest 1, Madrid 28922, Spain - Author
Univ Europea Madrid, Inst Et Clin Francisco Valles, Madrid, Spain - Author

Abstract

Background: An Advanced Care Planning (ACP) program of health decisions is the result of a process of reflection and relationship-building between the patient, their relatives and health professionals. It is based on respect for patients' autonomy, involving them in making decisions about their disease in a way that is shared between the medical team, the patient and their relatives. Up until now, the efficacy of an ACP has not been measured in the existing literature, and therefore it is unknown if these programs reach their goal. The main objective of our study is to evaluate the efficacy of an ACP program for decision-making in patients with advanced heart failure (HF) in comparison to usual follow up and care. This objective will be evaluated by the Patient Activation Measure test, which measures the participation and self-management of the patient in decision-making. Secondary objectives: to evaluate the effect of the program on quality of life, to know if the patients wishes expressed through the ACP program are fulfilled, to measure the impact of the program on patients' caregivers, to determine the satisfaction of patients included in the program and to evaluate the effect on quality of death.Methods: Randomized multicentre clinical trial at four hospitals in Madrid. Once they are included in the study, patients' allocation to groups (control vs intervention) will be made by alternative sampling. ACP will be applied to the intervention group, whereas in the Control Group usual follow-up will be carried out in HF units. All patients will fulfil questionnaires and tests related to the objectives of the study again after a 12-month follow-up period in order to gauge the effect of ACP in patients with advanced HF.Discussion: The characteristics of patients with advanced HF make them a model for designing ACP programs, given the high prevalence of this disease, the progressive increase in its incidence and it's clinical characteristics. Until now, the efficacy of this type of program has not been measured, so this Clinical Trial can provide relevant data for future ACP projects.Trial registration ClinicalTrials.gov Identifier: NCT04424680. Registered 9 June 2020. Retrospectively registered, https://clinicaltrials.gov/ct2/show/NCT04424680?term=NCT04424680&draw=2&rank=1.

Keywords

Advance care planningAdvance directivesAdvanced care planningAdvanced directivesClinical decision-makingDecision making, sharedDirectivesEndHeart failureHumansKnowledgeMulticenter studies as topicPalliative carePatient participationPatient satisfactionQuality-of-lifeQuestionnaireRandomized controlled trials as topicSelf-managementShared decision makingSpainUtility

Quality index

Bibliometric impact. Analysis of the contribution and dissemination channel

The work has been published in the journal Bmc Cardiovascular Disorders due to its progression and the good impact it has achieved in recent years, according to the agency Scopus (SJR), it has become a reference in its field. In the year of publication of the work, 2020, it was in position , thus managing to position itself as a Q2 (Segundo Cuartil), in the category Cardiology and Cardiovascular Medicine. Notably, the journal is positioned en el Cuartil Q3 for the agency WoS (JCR) in the category Cardiac & Cardiovascular Systems.

Independientemente del impacto esperado determinado por el canal de difusión, es importante destacar el impacto real observado de la propia aportación.

Según las diferentes agencias de indexación, el número de citas acumuladas por esta publicación hasta la fecha 2025-07-03:

  • WoS: 2
  • Scopus: 2
  • Europe PMC: 1

Impact and social visibility

From the perspective of influence or social adoption, and based on metrics associated with mentions and interactions provided by agencies specializing in calculating the so-called "Alternative or Social Metrics," we can highlight as of 2025-07-03:

  • The use, from an academic perspective evidenced by the Altmetric agency indicator referring to aggregations made by the personal bibliographic manager Mendeley, gives us a total of: 62.
  • The use of this contribution in bookmarks, code forks, additions to favorite lists for recurrent reading, as well as general views, indicates that someone is using the publication as a basis for their current work. This may be a notable indicator of future more formal and academic citations. This claim is supported by the result of the "Capture" indicator, which yields a total of: 61 (PlumX).

With a more dissemination-oriented intent and targeting more general audiences, we can observe other more global scores such as:

  • The Total Score from Altmetric: 1.
  • The number of mentions on the social network X (formerly Twitter): 1 (Altmetric).

It is essential to present evidence supporting full alignment with institutional principles and guidelines on Open Science and the Conservation and Dissemination of Intellectual Heritage. A clear example of this is:

  • The work has been submitted to a journal whose editorial policy allows open Open Access publication.